A Little Boys Amazing Journey & A families balance between... QUALITY & QUANTITY...
So TRUE....
Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown
Sunday, January 1, 2012
"2011" In Review...
A year that we accomplished sooo much...
* In January we stopped tube feeds! 3000 cc per day for almost 2 solids years! STOPPED
Devin began eating like a champ!! SUPER HUGE accomplishment for someone who was unable to eat by mouth for the first 5 years of life..
* With the stopping of the tube feeding... we solved the "monthly pneumonia" issue :) and yes mama was right!!! this boy was aspirating!! (even though they still won't admit it!)
* In February we came off the insulin pump!!
* In April we removed his feeding tube!
* In September we fulfilled a HUGE wish of Devin's... He returned to school!! As he viewed it,
"I FINALLY CAN BE NORMAL"
Not only did he get to go to school but he is in a program that is so wonderful for him.. He is learning and making such progress!! It has been AMAZING to watch the amount of success he has had in such a short period of time... and he is LOVING every minute of it!!! and we have truly been blessed with a team who are committed to seeing kids with challenges reach their potential and SUCCEED!!!
* In October we celebrated Devin's ((8th)) birthday... Yes, 8th!!
Devin's prognosis in the beginning was 3 to 4 years!! Shortly after his 5th birthday he had his bowel transplant... Knowing the first year was a milestone... the 5 year mark is the true test!! we will celebrate 3 years February 23rd.
* In November we had his last whole closed.. they surgically closed his feeding tube site!!!
NO MORE WHOLES IN HIM... NO MORE PLASTIC IN HIM...
Granted his abdomen looks like a road map gone bad... but we'll take it!!!
* In December (without giving it any attention) we marked 1 year hospital free for illness!!!!!!
HUGE, HUGE, HUGE accomplishment!!!
So, as we say goodbye to 2011 we have an 8 year old... eating machine... who is loving, living, laughing!, growing everyday, over coming obstacles, and making up for lost time do to illness!!!
Thank you ALL for your continued support & prayers...
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When I think back to Devin's 2nd Birthday Party and where you are today......it really puts a perspective on life and even more of a perspective on how truly AMAZING you all are!!
Here's to an even better and HEALTHIER NEW YEAR!!!
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