A Little Boys Amazing Journey & A families balance between... QUALITY & QUANTITY...
So TRUE....
Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown
Monday, October 3, 2011
Devin's liver numbers look better today... today was the final transition day for meds.. Although we are in a very gray area right now I am hoping all this will work! My local doctor is going to reach out to a hepatologist to see if they have any further suggestions... My plan is to see how well this combination of drugs work, see what effect it has on his liver, and see what effect it has on him... hopefully ALL will be positive!!! If not we will once again have to switch back to the meds that are causing his liver to fail :(
I spoke to my local GI doctor today in length... I believe she hears me.. I was very clear... QUALITY of life is my goal... I will take the bumps in the road.. I will take the twists and the turns.. I will search high and low for answers... I will NEVER give-up.. for as long as my boy is laughing and living..
One Day At A Time.... One Step At A Time...
Prayers Please!!!
I spoke to my local GI doctor today in length... I believe she hears me.. I was very clear... QUALITY of life is my goal... I will take the bumps in the road.. I will take the twists and the turns.. I will search high and low for answers... I will NEVER give-up.. for as long as my boy is laughing and living..
One Day At A Time.... One Step At A Time...
Prayers Please!!!
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