Nothing to positive really came out of today!! We are in a HORRIBLE spot... Devin's Liver is struggling under the stress that all his body has endured over the last 8 years, all the medications he takes daily, the little illnesses he picks up along the way, & the big illnesses too!

Finding a balance between medical and emotional well being has been EXTREMELY DIFFICULT and has taken almost 18 months!!!  I've tried it ALL... been to specialist after specialist... FINALLY we achieved balance!! Devin is laughing and living once again... EXCEPT his Liver is NOT!!

His Liver issues are believed to be coming from the combination of medications he is currently taken.. the combination of meds that is allowing him to live like a 8 year old boy!!!!  Their is ((1)) drug substitution that can be made to see if this will help the situation (this drug comes with a whole host of side effects too)... other then that their is nothing else they have to offer us...  only time will tell!!

We will do labs again on Monday and make the drug change tonight...

This is a very complex situation....

Thanks for your continued support and prayers!!!