A Little Boys Amazing Journey & A families balance between... QUALITY & QUANTITY...
So TRUE....
Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown
Monday, October 24, 2011
I, HATE... Mondays and Thursdays... yes, those are our lab draw days!!! Devin's Liver numbers are very high again!! so apparently the medication they started to help this situation is NOT working.... gggrrrr!!! Of course this turned my Monday into a little bit of a frenzied day... Phone calls! Questions?? NO ANSWERS...
It is becoming apparently very clear that this road is NOT going to be an easy one.. I for one question why we NEED to do labs twice a week? Clearly at this point their is nothing we can do. I understand from a medical standpoint why they want to monitor this... but from a Mom standpoint why must I hold him down two mornings a week before he leaves for school :( for blood draws..
For now I just wait... I am still waiting to hear from the transplant center. My local doctor would like a Liver biopsy, soon. I'll keep you posted!!
Please keep Devin in your prayers!!!
It is becoming apparently very clear that this road is NOT going to be an easy one.. I for one question why we NEED to do labs twice a week? Clearly at this point their is nothing we can do. I understand from a medical standpoint why they want to monitor this... but from a Mom standpoint why must I hold him down two mornings a week before he leaves for school :( for blood draws..
For now I just wait... I am still waiting to hear from the transplant center. My local doctor would like a Liver biopsy, soon. I'll keep you posted!!
Please keep Devin in your prayers!!!
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