So TRUE....

Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown

Saturday, March 12, 2011

BALANCE... will their ever be??

Devin is doing great off tube feedings... eating and drinking like a champ!! and loving every minute of it!!  We did lab work two weeks ago and his numbers NEVER!! looked better!! AMAZING!!  Unfortunately he still continues to struggle emotionally!! After taking him to NUMEROUS doctors.... having NUMEROUS evaluations.... and watching him struggle on a day to day basis we finally saw a psychiatrist last Monday (I've only been asking to see one since last June)  We were in his office for literally two minutes when he said "he has severe ADHD" lets forget trying to find a cause "this kids needs treatment ASAP and if the first treatment doesn't work we must keep going until we find the right one"  MUSIC TO MY EARS!!!  Finally a doctor that doesn't look at his entire history and medication list and just blame that!  If I have heard once I have heard a hundred times.... "he has so much on his plate... so many meds... do you really wanna add to this... do you really need another diagnosis"  YES!!! it is completely interfering with his quality of life!!

I came home feeling as though I could breath!! Finally some help!!

Thursday, we did our routine blood work!!  His Liver enzymes came back 4x what they should be... they have NEVER in his entire medical journey been this high!!  and he has NEVER looked better...
how can this be???  "In extremely rare cases his new med can cause liver toxicity and failure"  LORD HELP ME!!!! can this really be in 4 days, 4 doses... HOW??  So, we are coming off the medication, running a ton of tests, and doing an ultrasound!!!!  

Keep in mind... HE HAS NEVER LOOKED BETTER!!!! none of this makes sense with his Liver numbers being what they are.... (YES!!! they have been repeated and were worse the following day!)

Will their ever be BALANCE???

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