So TRUE....

Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown

Monday, October 4, 2010

Change... & Acceptance...

Change... is something I don't deal well with... I love routine.... same old same old...  Well after MUCH!!! consideration, hours of analyzing the pro's and the cons, doctor visits, evaluations, and meetings... WE (I) have decided that it is in Devin's best interest to do... Medical Home Instruction with tutoring...  As many of you know Devin has been struggling in school, physically he is exhausted!!, emotionally he is all over the place...  Is this possibly just to much for him??   No one had that answer for me.  But based on what we were seeing something was wrong....

Accept... I needed to accept that school clearly was not working... In my mind I could only ask myself...  Are my standards to high for him??  Am I pushing him harder then his medical condition allows him to be pushed??  So many questions and thoughts... but NO answers... and biggest question being... is lowering my standards a sign of me giving up on him???

I have come to accept that he physically can not do it... So change is in the works...  He will God willing be given 5 hours a week of Medical Home Instruction...  1 hr twice a week of a reading tutor.... 1 hr twice a week of a math tutor...  he will continue with his 3 hrs of speech therapy per week...  & his 1 hr and 1/2 of OT... When putting this all together it will provide him with a very good balance of work and rest... This also will make it possible to do some extra curricula activities...

As all of you know I have strived for BALANCE  throughout this journey.... Quality of life is my ultimate goal...   In trying to achieve both their are things you need to accept that are not always easily accepted...

So, as I accept this change I ask you all to pray that it finally gives us the balance we need between health, academics, and living!!!

Thanks to all who have lent an ear to listen to me through this very difficult decision...

2 comments:

Carolyn said...

Sounds like a wonderful solution. I know Devin will flourish with it. God is so good, isn't He? May His peace cover you and yours.
In His great love,
Carolyn O'Cain

Lori said...

Sorry I haven't replied to your latest email.....but I think this is a GREAT idea! It's not perfect...it's not easy....it definitely isn't the "norm," but it is exactly what this little boy needs. I know you are nervous....but I think overall, you are going to see a completely different stress-free Devin again. You are pretty amazing to see this need and not just continue pushing him towards the "norm." Way to go Mom!