So TRUE....

Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown

Sunday, August 8, 2010

Nice Weekend... But Still..

Some issues.... We had a great time last night at the Mets/Phillies game... Beautiful Night!  Great Seats! & Beautiful Weather!!!  Devin was so excited and so cute... He wore his Phillies shirt and hat... (Thanks to Janine!!)  He had on his Yankee sneakers... He cheered for the Mets and the Phillies depending on what was going on... and by the end of the game he had on his Yankees sweat shirt and hat!!! LOL

Sesame Place was NOT as successful today... as a matter of fact we just made a donation!!   Devin continues to have issues tolerating his feeds.  Unfortunately we didn't realize how BIG the issues would become until we were in the park already.. :(   So needless to say after 6 trips to the bathroom and a blood sugar of 59... It was clearly time to call it a day!! and head home...

* He is back on pedialyte tonight.... and we have cut back on his immune suppression... Praying this helps the situation...

God willing we will have more of a clear cut game plan tomorrow!!

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