Learning Every Day....

Submitted by Colleen and Derrick on Mon, 07/05/2010 - 8:05pm.

Now Summer is here!! Our time to ENJOY, HAVE FUN, & LIVE LIFE with less stress....

BUT NOW I AM LEARNING!!! I so desperately wanted Devin to have a "NORMAL" life... a life that after transplant would somehow... someway... become just as routine as any other 6 year old... But now I realize... my expectations were way to high!! and for that I am sad...

Devin is NOT the Devin I had before last October... He is a combination of a lot of things.. none of which are good... he is moody, cranky, whiney, and just lacks the shine that once was in his eyes.. He sleeps more then I can describe... He plays for short periods of time and then sleeps some more... everything wipes him out... IT IS SO SAD TO SEE!!! Sometimes I feel as though his frustration and moodiness comes from exhaustion!! I now see first hand how school became such an issue the last couple of months.. I can honestly say as of right now he is not physically up to it...

So my new game plan for the summer is to take everyday as it comes... cherish the good hours... let him sleep when he needs to... and take one day at a time...

He starts his summer routine tomorrow.. which will be 6 weeks of tutoring, speech, and occupational therapy... Tues, Wed, & Thurs 2 hours a day.... I hope to fit in some fun on Mondays & Fridays....