Good Night....

Submitted by Colleen and Derrick on Tue, 03/03/2009 - 10:39am.

Devin was finally able to get a good nights sleep... Do to the good news of yesterday they were able to hold off on the anti-rejection drug till this morning. It was so hard on him during the night.... he would vomit during the infusion and the HIGH!! dose steroids would make him nuts. He needed a good nights rest... He will be starting his last IV infusion of Campath this morning. We are not looking forward to it, but every step forward is one step closer to the door!!

Today, Devin will be allowed to have water and they will start him on Pedialyte through his feeding tube. He is complaining that he is starving and would like McDonalds...LOL McDonalds and new intestines do not go together at this point. Yesterday he got into chocolate pudding and enjoyed it... The joy of being five and told you can't eat... Thank God the Dr. took it well.

Thank you for all your thoughts and prayers!!!